Thursday, February 5, 2009

Good results for MIBG Scan

Jovee and Brooke were playing outside and Jovee decided to be brave; stood on top of one of the snow banks in our front yard then went a tumbling down. The result: some good scars to show.

Restaging Study, compared to 11/5/08

A whole body nuclear tumor localzing scan was performed.

FINDINGS: There is mild increased MIBG localization in the left supraclavicular and left mediastinum, stable to diminished compared to the previous MIBG study.

Scan of Abdomen and Pelvis: No abnormal MIBG localization.

IMPRESSION: Stable to mildly improved compared to 11/5/08 study and no new areas of abnormal MIBG localization.


Jovee went to the pediatric optometrist and has to wear glasses. Her left eye is 20/40 and her right eye (where it's related to Hoerner's syndrome) is 20/50.

Wednesday, February 4, 2009

Good results for CT Scan

The CT Technologist was suprised the we didn't sedate her for the CT Scan. After the scan was done, she asked, "Is she always this perfect for the scans?". Jovee has always been cooperative and submissive when she has to do the CT. Yes, she's always perfect.

Not so fun getting blood draws.

Good results from the CT Scan, now waiting for the MIBG Scan that Jovee took today. Usually, if the CT's are good then the MIBG's are good. We're hoping.

Comparison from 11/4/08, 8/13/08, 4/8/08

CHEST FINDINGS: A 1.4 x 1.0 cm upper left paratracheal nodule previously measures 1.4 x .9 cm. A .0 x .7 upper right paratracheal nodule is also unchanged. The lungs are normal. No osseous (bone) abnormality.

ABDOMEN FINDINGS: A 7mm faint, ill-defined enhancing focus in the liver within segment 5 is unchanged. The liver is otherwise normal. The spleen, pancreas, and adrenals are normal. The kidneys and proximal ureters are normal. The colon and small bowels are normal.

PELVIS FINDINGS: The iliac and femoral vessels are unremarkable and there is no pelvic or inguinal adenopathy. No osseous abnormality. The colon and small bowel are normal.

IMPRESSION: No change in the appearance of the chest, abdomen, or pelvis.

CT Scan of soft tissue neck with contrast:

In the region of the upper mediastinum just to the left of the esophagus there is a enhancing 15 x 10 mm nodule which is unchanged from prior chest CT Scan.


Stable appearance to the enhancing nodule in the upper mediastinum just to the left of the esophagus.

Stable appearance to the left supraclavicular / lymph node Level IV soft tissue fullness.
Thanks for your prayers.