Thursday, April 10, 2008

Still have to wait til Friday

So the impression from the MiBg scan has some confusing words:

1. The new focus of abnormal enhancement in the liver is not metabolically active greater than background liver. It is therefore not perceived on today's study.
2. Persistent increased MIBG metabolism at the upper mediastinum.
3. The focus of MIBG metabolism in the left supraclavicular region which was seen on previous MIBG studies (but not to the most recent study 02/07/2008) is now once again evident.

The wording for #1 is confusing. The doctor was supposed to call me back to clarify but didn't. Contacted them at 9:00 am, heard nothing, so called them at 4:00 pm to find out doctor was supposed to call me but didn't and went home. So flipp'in frustrated with just being left to wait.

I tried calling the doctor that transcribed the findings and he wouldn't talk to me, said I had to talk to the doctor.

CT scans read stable for the most part. Also included "moderate to severe ethmoid and severe maxillary sinus opacifications.". Jeannine knew she had some kind of sinus infection.

Chest findings: A 1.4 x 0.9 cm ill-defined enhancing mass to the left of the esophagus near the thoracic inlet is probably minimally increased since the recent comparison where it measures 1.1 x 0.8 cm. No other mediastinal abnormality.

Abodomen findings:

1. There is a new, 1.5 x 1.5 cm, enhancing nodule in segment five of the right lobe of the liver. The liver parenchyma is otherwise normal. Impression: New 1.5 cm round enhancing nodule in the right lobe of teh liver suspicious for metastasis.

2. Persistent small enhancing nodule to the left of the upper thoracic esophagus at the thoracic inlet which was questionably minimally increased in size and currently measures 1.4 x 0.9 cm.

Her urine VMA came back and it did increase to 32. Was 29.4, before that 27.6. Again, higher the number usually means more neuroblastoma.

Yes, I'm pretty frustrated. Mostly frustrated because the doctors assistant didn't know how to put it in easy terms for me, the doctor was supposed to call me back but went home, the doctor that looked at the scans and interpreted it wouldn't talk to me, the more than likely metastasis in the liver, the primary tumor getting a little bit bigger than it was before, VMA level going up.


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